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The Alle Shea Project
 Call us at: 585-298-1973
Alle's Unbreakable Spirit
April 14th, 2009 my wife and I welcomed our first daughter Alle Shea Collazo into the world. Alle was born with type II Osteogenesis Imperfecta (OI). OI is a genetic disorder characterized by bones that break easily, often from little or no apparent cause. Rolling over in bed or sneezing can cause a fracture. Type II is the most severe case of OI, At birth Alle had broken arms, legs, wrist and Alle's skull had many fractures. Alle lived a miraculous 5 weeks battling the brittle bone disease but, sadly on May 21, 2009, Alle passed away due to respiratory complications caused by OI. To honor Alle's brave fight we created the Alle Shea Project and with help from the OI Foundation we host various fundraisers to raise funds for research and to help support families with OI, we work hard to raise awareness of OI in Alle's name and to keep her fight alive.  Please help us honor our brave Alle's battle by supporting our cause. 
Alle Shea Project ® 138 Clark Ave, Rochester, NY 14609

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​Upcoming Events

Zumba fundraiser
TBD

OI Night at the Rochester Knighthawks
February 18, 2017 @ 7:30pmFebruary 18, 2017 @ 7:30pm
Blue Cross Arena

Rare Disease Day
February 28, 2017
www.rarediseaseday.org

Uno Pizzeria & Grill Dough-Raiser
April 14, 2017

Wishbone Day
May 6, 2017
International day of OI awareness
wear yellow on this day